KOPPEL: Knowledge and opinions of professionals and the general public on end-of-life decision making

The practice of medial end-of-life decision making in the Netherlands is regulated by legislation and guidelines, such as the Euthanasia Act from 2002, the Act on medical treatment agreements from 1994 (Wgbo, Wet op de geneeskundige behandelingsovereenkomst) and the guideline for Palliative Sedation of The Royal Dutch Medical Association (KNMG) from 2009. Knowledge of these regulations is important for the effectiveness of it. Besides knowledge and interpretation of these regulations also opinions of those involved can influence the practices of end-of-life decision making. Moreover, knowledge and opinions are mutual influenced by each other and associated with personal characteristics, earlier experiences, and with societal factors such as media.

KOPPEL is a study on knowledge of the Dutch legislation on medical end-of-life decision making of the Dutch general public and health care professionals. Aim of this study is to get insight in the knowledge and opinions of the general public and health care professionals on the legislation on euthanasia, palliative sedation and advance directives. This study also aimed for insight in personal experiences, related problems, non granted euthanasia requests and news on end-of-life decisions in the Dutch media.

This study has been conducted by researchers of the Erasmus MC Rotterdam, UMC Utrecht and UMC Groningen.

For further information, please contact: N.J.H. (Natasja) Raijmakers, MSc